Wednesday, April 25, 2007

BoingBoing Shamefully Ignores Valid Questions; More about User-Generated Content

Filed under: Pseudoscience Fridays

I am so sick, I fell into the bay!

A quick update on the WhoIsSick.org story. We have contacted BoingBoing's David Pescovitz, a celebrated science journalist and writer-in-residence for UC Berkeley's College of Engineering, for an explanation. Mr. Pescovitz, however, has stuck his head in the sand and has decided to ignore questions from us, as he really has no explanation. Referring to WhoIsSick.org as today's equivalent of Dr. John Snow's efforts to map cholera in London in 1854 shows fundamental lack of understanding by Mr. Pescovitz of what science is. Throwing questionably collected data on the map is not science. For BoingBoing, however, the definition of science seems to be any feel-good, user-generated content.

Also, our very own almost-MD Josh searched through Medgadget archives and uncovered a story about HEALTHmap Global Disease Tracker, an effort by two doctors at Children's Hospital Informatics Program in Boston.

From that article:

"While working on a state-funded program to track disease outbreaks in Massachusetts, the two discovered some inconsistencies in how information is reported. Some sources, such as ProMed-mail, provide very specific data that is verified by medical experts, but the process can be lengthy. At the other extreme, newspaper articles and blog entries come out far more quickly, but they are more likely to contain errors such as unconfirmed reports about avian flu infections in a country.

"You always have this trade-off between timeliness and specificity," said Brownstein."

As Josh says, "... at least they realize the scientific trade-offs between speed and accuracy. Their site also gives readers the option to map only information from credible sources like ProMed, WHO, etc... None of this Johnny-come-lately, i think i have a fever b/c my temp is 99.1..."

Also, if you have not followed our discussion at WhoIsSick post, then check it out. Your opinion will count.

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replies: 4 comments
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yeah I am baffled by second article on the same subject, as was the case decades ago this was same reaction of medical community when WebMD became public. Seems like narrow minded doctors are scared about user generated contents, recommendations be it WebMD, WebMD fourms, Craigslist health forums, Dailystrength.org and now user generated recommendations of doctors on RevolutionHealth etc. I think this goes beyond whoissick.org, you are waging a war against user generated sharing of information. It is a deep seated fear. Anyway good luck, all you are doing is giving more buzz and press to whoissick.org.


Posted by: Adamtrieger
on April 25, 2007 04:30 PM GMT

I also wanted to add,have you checked out Custom Search Engines from Google? and searched on symptoms etc, well it now gives you more information than before and in more organized way, so are you saying that Google is doing terrible thing now that I dont have pick up phone and call doctor since internet has wealth of information?.Also checkout Yahoo answers on health questions. You are fighting a loosing battle. Also people all over the net are writing reviews about doctors and rating them. Well welcome to new age, wake up and smell coffee!!! How many of us are you going to try to stop.


Posted by: adamtrieger
on April 25, 2007 04:34 PM GMT

All the best to you, sir, in using whoissick.org to make irrational decisions. Ignorance is bliss.

In terms of empowering patients with information, this little site of ours, day in and day out been doing more than you will ever do on Craigslist. Just because whoissick.org is user-generated, doesn't mean it is good (that's what BoingBoing thinks; that's their lowest common denominator). And as such, we will never praise a user-generated garbage. But it is your choice if you want to dig it.


Posted by: DrO
on April 25, 2007 06:28 PM GMT

Adam, yes Google is doing a great job of improving their search results for [some] medical topics. I especially like how they divide the info into sx, tx, dx, for patients vs for health professionals. However, you may remember our blogged about the BMJ's research showing that Google [HELPED] make accurate dx in only 58% of the time. And that was with TRAINED medical professionals using the technology. Before you bash us and make ridiculous claims that we are some how opposed to the new technology to help pts, you might take a second and think who're talking about, i.e., a group of techy-early adopting-gadget loving doctors/scientists who run the MOST successful medical technologies web site ever. So maybe its not that we're anti-technology and maybe just that we know what we're talking about.


Posted by: Josh
on April 25, 2007 07:04 PM GMT

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